After Zika

After Zika is a collaborative multimedia blog project that explores the everyday lives of Brazilian families raising disabled children diagnosed with congenital Zika syndrome (CZS). I have been running the blog since 2018. The project is currently on hiatus as we transition into a new phase (more news to come).

The idea for the project came from a concern raised frequently by the parents I was working with in Bahia that they and their children were being forgotten by the media and by the state. The Zika virus epidemic had made international headlines, but attention soon faded, leaving the thousands of families now caring for disabled children with multiple ZIKV-related impairments in relative obscurity. Through text, sound, and visual media, parents tell their stories of uncertainty, care, frustration, love, and coming to reckon with their children’s disabilities in a context of stark social inequality.

You can read these stories at www.AfterZika.org. I also wrote a piece on Somatosphere about the project, which you can find here.